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Haven't been around for a while but keep reading updates!! Options
Natalie
#1 Posted : Thursday, June 06, 2013 10:11:27 AM Quote
Rank: Member

Groups: Registered

Joined: 7/20/2012
Posts: 25
Location: Maidenhead
Hello all,

Hope everyone's doing okay! I haven't been on here in a while but do keep myself updated with the post. I'm missing it now and need to chat to people who understand me again!

Life for me recently has been very busy with ups and downs! The best thing in life happened to me last month, I got married at the start of May. Had an absolutely amazing time, and managed To walk down the aisle with NO crutches..was so proud and happy with myself! By the end of the night I was hurting a lot but was worth every minute of it! We had a few days away by the coast and are going to Devon in a few weeks for a week! Looking forward to it, just hope I can cope in the caravan!

The bad news is my RA has had a huge flare that I can't control, went to see rheumy and said I couldn't cope much longer, (a leg that doesn't straighten, and a leg that doesn't like to bend, I now have a hip that doesn't like me walking, a horrid shoulder, a stiff neck and a swollen ankle!) MTX oral tablets has now been changed to MTX injections, stronger painkillers and then a review in 2.5 months to see about anti tnf's, although she was more than determined to get me on them.

I'm finding all this very hard again and very depressing, especially when it's nice weather and I can't run about after my children, play football and chase after them at the park. I must admit I look at other mums running after their children and get very jealous and upset!

Anyway that's enough of me babbling away, but just needed to get some things of my chest and to get back on the forum!

Natalie 😊 x
Little Miss Sunshine73
#2 Posted : Thursday, June 06, 2013 12:52:02 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/29/2013
Posts: 106
Location: Surrey
Hello Natalie,

I'm quite new to the forum so still trying to understand medication!

Congratulations on your wedding BigGrin

I hope your medication gets sorted and your rheumy team gets you back on track ThumpUp

Louise.
lisamcb
#3 Posted : Thursday, June 06, 2013 8:37:47 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
Hi Natalie

Sorry to hear you are going through the mill and so hope you get the medication sorted out and gain some relief. I'm a mum to 2 wee boys myself so know a bit of what you are feeling. Congratulations on your wedding and keep us posted of how you are doing.

Lisa xx
Jane.
#4 Posted : Thursday, June 06, 2013 10:23:51 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Hi Natalie

Not many characters on twitter back to you.LOL
When things are good with ra they shine through big time however when pain is evident along with stiffness/lack of movement it reminds me that I'm not superwoman!

Me personally in the past and probably on the future have shed tears - what I could do before ra and learning to adjust with ra. The sad thing is my little one doesn't know any better than me being a bit slower than my hubby out and about!!Razz

I'm a positive person where I don't do the "I can't" but instead I've learnt to adapt!!
I've never been able to climb up high at soft play with my little one......BUT that's what my hubby is there for!Scared Razz

If rheumatology say go down the anti tnf's route - take it! (She says 4 weeks of being on anti tnf's) as I was saying on twitter DM to you, I take enbrel because if it doesn't work then it goes out of the system quickly ready to start another!ThumpUp
I don't inject in front of my little one (no need to alarm her).

If you feel your body needs fixing, then mention to rheumy to get you referred to orthp department. I did to give me more mobility in the future....and make me less mangled!

Take what is offered to you to help you be more mobile, and blast the loopy ra!

You are not alone
Sending you a gentle hugWub
Jane
Xxx


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